tag:blogger.com,1999:blog-25557196829569939262024-03-05T17:07:30.583-08:00Ride for MND '08Unknownnoreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2555719682956993926.post-54012413106371085582008-04-24T16:06:00.000-07:002008-04-24T16:12:31.392-07:00One week to go...Everyone's prepared (well save for the last minute things to sort), and over the next few days participants from all over will be heading for the Netherlands to start Ridin' for MND.<br /><br />Heaps of news on our <a href="http://www.rideformnd.com">website</a> - and we're updating that rather than the blog - so take a look if you want to hear about affiliated events, buy all sorts of goodies at one of our auctions, see how we're doing on the fundraising front or just generally find out what we're on about.<br /><br />See you there!Nataliehttp://www.blogger.com/profile/15800886935239733829noreply@blogger.com4tag:blogger.com,1999:blog-2555719682956993926.post-41415771486348018642008-03-31T11:41:00.000-07:002008-03-31T11:42:52.152-07:00We have a website!Ride for MND '08 now has its very own home on the internet - <a href="http://www.rideformnd.com/">www.rideformnd.com</a><br /><br />Check it out to download our funky fliers, find links to all our fundraising sites, check out funny pics or find out more about Motor Neurone Disease.<br /><br />See you there!Nataliehttp://www.blogger.com/profile/15800886935239733829noreply@blogger.com0tag:blogger.com,1999:blog-2555719682956993926.post-86662138505964226212008-03-25T06:27:00.000-07:002008-03-25T06:28:53.066-07:00Donate in USDDonation is now possible at the <a href="http://www.firstgiving.com/rideformnd2008">Firstgiving</a> site in the US. Spread the word.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2555719682956993926.post-3561115882912174162008-02-25T13:12:00.001-08:002008-02-25T13:15:48.149-08:00Proper Dutch Donation Page now up!<span style="font-family: verdana;">I finally found a Dutch equivalent to justgiving! You can now also donate at <a href="http://www.geefsamen.nl/duncanbayly">www.geefsamen.nl/duncanbayly</a>. In Euros!</span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2555719682956993926.post-34189971423393042122007-11-26T19:08:00.000-08:002007-11-26T19:10:08.709-08:00Join our Facebook group<div style="text-align: justify;"><span style="font-family: verdana;">Apparently all the kids are on Facebook. You can find the group </span><a style="font-family: verdana;" href="http://www.facebook.com/group.php?gid=6259419349">here</a><span style="font-family: verdana;">.</span></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2555719682956993926.post-25256911488781562452007-11-26T17:41:00.000-08:002007-11-26T17:52:13.140-08:00Australian and Dutch Donations now possible!<div style="text-align: justify;"><span style="font-family:verdana;">Australians can now donate via the <a href="http://www.mycause.com.au/fund_preview_page.php?id=241">mycause.com.au</a> website.</span> <span style="font-family:verdana;">Donations here over $2 are tax-deductible.</span><br /><br /><span style="font-family:verdana;">And Dutchies can donate directly to the <a href="http://www.stichting-als.nl/index.php?option=com_content&task=view&id=15&Itemid=49">Dutch ALS/MND Society</a>. </span><span style="font-family:verdana;">These donations are tax-deductible too, but I'm not sure exactly how. If I learned one thing in Amsterdam, it was to not try to understand the Dutch tax system...</span><br /><br /><span style="font-family:verdana;">NZ online donations should be up by the end of the week.</span><br /></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2555719682956993926.post-67933509806732742822007-11-14T03:36:00.000-08:002007-11-26T17:50:12.573-08:00UK Donations now possible!<div style="text-align: justify;"><span style="font-family: verdana;">I have set up a page at </span><a style="font-family: verdana;" href="http://www.justgiving.com/rideformnd08">justgiving.com</a><span style="font-family: verdana;">. Everyone can donate to the UK Motor Neuron Disease Association, which helps people who have been diagnosed with MND and coordinates and sponsors research. UK residents will have their donations increased 28% via Gift Aid.</span><br /><br /><span style="font-family: verdana;">Kiwis and Aussies can donate here too but donations will not be tax deductible. We are looking into this and will be in touch ASAP!</span><br /></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2555719682956993926.post-30519438076424246832007-11-09T09:46:00.000-08:002007-11-14T02:13:39.373-08:00Kick Off!<span style=";font-family:verdana;font-size:100%;" ><br /></span><div style="text-align: justify;"><span style=";font-family:verdana;font-size:100%;" ><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3ZXF6tw1c1rsKUUt_DPfmeYlk9kypFg2fp_eqILnfRaC_qSLnfoIw1aIhYMJY-pitqHhve9Cwdb3b_DUsbna7kc0vI-mvXz6sceemCBQXPmKN7Zhpvy7ChUxLpfYSqhDW5FCtbrjrdCA/s1600-h/CIMG0345.JPG"><img style="margin: 0pt 0pt 10px 10px; float: right; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3ZXF6tw1c1rsKUUt_DPfmeYlk9kypFg2fp_eqILnfRaC_qSLnfoIw1aIhYMJY-pitqHhve9Cwdb3b_DUsbna7kc0vI-mvXz6sceemCBQXPmKN7Zhpvy7ChUxLpfYSqhDW5FCtbrjrdCA/s200/CIMG0345.JPG" alt="" id="BLOGGER_PHOTO_ID_5130899379806582514" border="0" /></a>Motor Neurone Disease is a debilitating neurological condition that affect the nerves in the brain and spinal stem that control voluntary muscles. As the nerves die out, the muscles waste and atrophy, spreading from the hands and feet to the arms and legs. Speaking and swallowing can also be impaired. Once the diaphragm is affected, breathing is restricted. Motor Neurone Disease is fatal and has a prognosis of two to five years. There is no cure. There is no treatment.</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >Two months ago I was diagnosed with Motor Neurone Disease.</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >However, there is some hope. Research has been progressing rapidly and the identification of Riluzole as a medication to extend lifespan by three to six months has thrown up many clues and avenues for research into how this disease is acquired and how pharmaceuticals can be used to treat, slow and finally halt the progression of symptoms.</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >Since diagnosis, I have been touched by the number of people who have offered their help and heartbroken by the response I have to give, "There's nothing we can do." Well, I've decided we've got to do something. Helping the researchers of this condition may help me. It may not. But I'd like to help whoever is diagnosed with Motor Neurone Disease in future.</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >On the weekend of 3 and 4 May 2008, I am going to cycle from Amsterdam in the Netherlands to London in the United Kingdom and hoping to be sponsored with all funds being donated to Motor Neurone Disease research. But I need your help. I can't train, organise, fundraise and publicise alone. So please let me know if you are able to help out with the following tasks.</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >- </span><span style="font-weight: bold;font-family:verdana;font-size:100%;" >Participate</span><br /><br /><span style=";font-family:verdana;font-size:100%;" ><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFXZ_hj_p0qdzU6Sx0Y6tKgLsW33tLt5O9oeTpcr-KLqryR9v0ly5_uqWskZ4JgaulMDjgVZe7K5esxuB-xcVeTXwsrjvclvZkMDK8JUW8yZ1DHlDMnbT-W6iPG0E6OvgAUzICfUyip8I/s1600-h/DSC_0115.JPG"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFXZ_hj_p0qdzU6Sx0Y6tKgLsW33tLt5O9oeTpcr-KLqryR9v0ly5_uqWskZ4JgaulMDjgVZe7K5esxuB-xcVeTXwsrjvclvZkMDK8JUW8yZ1DHlDMnbT-W6iPG0E6OvgAUzICfUyip8I/s200/DSC_0115.JPG" alt="" id="BLOGGER_PHOTO_ID_5130899603144881922" border="0" /></a></span><span style=";font-family:verdana;font-size:100%;" >Join me on the ride! I'd love to get a huge crew on the ride as well. Come on a racer, een omafiets, a chopper! The kicker is that it really isn't that far! From the Dam to Hoek van Holland to meet the ferry is 80 km and from Harwich to London is 130 km. That may sound daunting at first, but I did the Round the Bay in a Day in Melbourne off a couple of months training and that's 210 km. With this one, you get an nap in the middle!</span><br /><br /><span style=";font-family:verdana;font-size:100%;" ><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimTsA1W2ad-wCIaKqOTVvwLiFaELznjerNW4_FlQ-v1AoAPNyuzKOcKfdxQm68jXP9ZhziUyrlxGI5wJjdrYPhp7VNL70d867odi9WyDOYlMRWtYMOOm_8kpjJ_JqWCjEKEOUGyXhDUwU/s1600-h/DSC_0012.JPG"><img style="margin: 0pt 0pt 10px 10px; float: right; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimTsA1W2ad-wCIaKqOTVvwLiFaELznjerNW4_FlQ-v1AoAPNyuzKOcKfdxQm68jXP9ZhziUyrlxGI5wJjdrYPhp7VNL70d867odi9WyDOYlMRWtYMOOm_8kpjJ_JqWCjEKEOUGyXhDUwU/s200/DSC_0012.JPG" alt="" id="BLOGGER_PHOTO_ID_5130899839368083218" border="0" /></a>It can be a long way to Amsterdam though, so if you are interested in a solidarity ride in another part of the world (New Zealand, Australia, I'm looking in your direction), let me know! Of course, that will mean you miss out the Keukenhof gardens in full Dutch tulip bloom and Koninginnedag party in Amsterdam a few days before, which is officially the maddest national holiday ever.</span><br /><br /><div style="text-align: justify;"><span style=";font-family:verdana;font-size:100%;" >- </span><span style="font-weight: bold;font-family:verdana;font-size:100%;" >Support</span><br /><br /></div></div><div style="text-align: justify;"><span style="font-size:100%;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMg2Px49ETL4zJUM6th0nPaCv9FrdtHShLNlxBlqhh3B-ynGRNacP4LDO2Qcrxb5ILGHNgMjoi4PI2TxjaihFo-ZxUEZ6q0OQICI0qe9P2D147ThbKOLGZYqsYOhSHngzIOq8pVrrqSi0/s1600-h/DSC_0016.JPG"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMg2Px49ETL4zJUM6th0nPaCv9FrdtHShLNlxBlqhh3B-ynGRNacP4LDO2Qcrxb5ILGHNgMjoi4PI2TxjaihFo-ZxUEZ6q0OQICI0qe9P2D147ThbKOLGZYqsYOhSHngzIOq8pVrrqSi0/s200/DSC_0016.JPG" alt="" id="BLOGGER_PHOTO_ID_5130900230210107170" border="0" /></a><span style="font-family:verdana;">If the idea of all that exercise makes you tired, we'll need drivers and bike techs on the day. If you are comfortable driving on the right one day and on the left the next, you are just the person we are looking for.</span></span><br /></div><br /><div style="text-align: justify;"><br /><span style=";font-family:verdana;font-size:100%;" >I am on my way back home to New Zealand soon, so it would be fantastic to have local ride directors - one for the Netherlands and one for the UK - who can lock down the route and coordinate with the ferry and accommodation in Harwich.</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >Everyone will want to know what's going on too, so if someone is a whiz at communication, keeping a website up to date and maybe designing a poster or two, that would be ace!</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >- </span><span style="font-weight: bold;font-family:verdana;font-size:100%;" >Billet</span><br /><br /><span style=";font-family:verdana;font-size:100%;" ><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjev2mGypl0FDK6WuOpALxUw2suGbuO9aXBZ0GYDm3thEvbZJlzrBJihKw22sCxq4WHfjSlZsyg76z1Ln7ubPkgT57W3t84Zal-kc_Hpau06QQ9TZDR_FEx53aMtvZYDaj4XE4XZ6s4v5g/s1600-h/CIMG1992.JPG"><img style="margin: 0pt 10px 10px 0pt; float: right; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjev2mGypl0FDK6WuOpALxUw2suGbuO9aXBZ0GYDm3thEvbZJlzrBJihKw22sCxq4WHfjSlZsyg76z1Ln7ubPkgT57W3t84Zal-kc_Hpau06QQ9TZDR_FEx53aMtvZYDaj4XE4XZ6s4v5g/s200/CIMG1992.JPG" alt="" id="BLOGGER_PHOTO_ID_5130900311814485810" border="0" /></a>We'll need places to sleep and prepare and rest at either end of the race. If you can offer a spare room, bed, couch or particularly soft bath, get in touch!</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >- </span><span style="font-weight: bold;font-family:verdana;font-size:100%;" >Fund raise</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >Spread the word and coordinate fund-raising activities. Would someone in your family, workplace, club or church like to ride with us? Could you hold a quiz night or cake stall to raise some money for us? Does your employer have a staff foundation or charity arm that can help out?</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >- </span><span style="font-weight: bold;font-family:verdana;font-size:100%;" >Donate</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >Finally, if you can contribute or sponsor a rider, please let me know. At the moment I am hoping to work with the MND Association in the UK, which appears more research based than those in NZ and Australia, but once we know exactly where we can direct your donations, we'll let you know!</span><br /><br /><span style=";font-family:verdana;font-size:100%;" >So, please get in touch, get involved, get training and pass this email along!</span><br /><br /><div style="text-align: left;"><span style=";font-family:verdana;font-size:100%;" >You can keep up to date on what is happening at <a href="http://rideformnd08.blogspot.com/">http://rideformnd08.blogspot.com</a>. Please send all emails to <a href="mailto:rideformnd08@googlemail.com">rideformnd08@googlemail.com</a>.</span><br /></div><br /><span style=";font-family:verdana;font-size:100%;" >Duncan<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwfClfTNscIsYmEqYBmNMLOJdMO1FbsksmgC2x99sAmaylgAqsS1vncGtcDmX4LzUfoC8lW5bjGzXDreOJ8GYWgBnWSm7pFjC4IO3T6Tzk_MMWZpL7gg1KIsZSniVAXY8Y0Vqe2DMesco/s1600-h/DSC_0032.JPG"><img style="margin: 0pt 0pt 10px 10px; float: right; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwfClfTNscIsYmEqYBmNMLOJdMO1FbsksmgC2x99sAmaylgAqsS1vncGtcDmX4LzUfoC8lW5bjGzXDreOJ8GYWgBnWSm7pFjC4IO3T6Tzk_MMWZpL7gg1KIsZSniVAXY8Y0Vqe2DMesco/s200/DSC_0032.JPG" alt="" id="BLOGGER_PHOTO_ID_5130901626074478402" border="0" /></a></span><br /></div><ul style="text-align: left;font-family:verdana;"><li><span style="font-size:100%;"><a href="http://www.mndassociation.org/">Motor Neuron Disease Association (UK)</a></span></li><li><span style="font-size:100%;"><a href="http://www.keukenhof.nl/nm/english.html">Keukenhof</a></span></li><li><span style="font-size:100%;"><a href="http://en.wikipedia.org/wiki/Koninginnedag">Koninginnedag</a></span></li><li><span style="font-size:100%;"><a href="http://www.stenaline.nl/stena_line/gb/home_-_netherlands.html">Hoek van Holland to Harwich ferry</a></span></li><li><span style="font-size:100%;"><a href="http://www.bv.com.au/great-rides/40254/">Training tips for long rides (Bicycle Victoria's Round the Bay in a Day)</a><br /></span></li></ul>Unknownnoreply@blogger.com3