Join our Facebook group

Apparently all the kids are on Facebook. You can find the group here.

Australian and Dutch Donations now possible!

Australians can now donate via the mycause.com.au website. Donations here over $2 are tax-deductible.

And Dutchies can donate directly to the Dutch ALS/MND Society. These donations are tax-deductible too, but I'm not sure exactly how. If I learned one thing in Amsterdam, it was to not try to understand the Dutch tax system...

NZ online donations should be up by the end of the week.

UK Donations now possible!

I have set up a page at justgiving.com. Everyone can donate to the UK Motor Neuron Disease Association, which helps people who have been diagnosed with MND and coordinates and sponsors research. UK residents will have their donations increased 28% via Gift Aid.

Kiwis and Aussies can donate here too but donations will not be tax deductible. We are looking into this and will be in touch ASAP!

Kick Off!

Motor Neurone Disease is a debilitating neurological condition that affect the nerves in the brain and spinal stem that control voluntary muscles. As the nerves die out, the muscles waste and atrophy, spreading from the hands and feet to the arms and legs. Speaking and swallowing can also be impaired. Once the diaphragm is affected, breathing is restricted. Motor Neurone Disease is fatal and has a prognosis of two to five years. There is no cure. There is no treatment.

Two months ago I was diagnosed with Motor Neurone Disease.

However, there is some hope. Research has been progressing rapidly and the identification of Riluzole as a medication to extend lifespan by three to six months has thrown up many clues and avenues for research into how this disease is acquired and how pharmaceuticals can be used to treat, slow and finally halt the progression of symptoms.

Since diagnosis, I have been touched by the number of people who have offered their help and heartbroken by the response I have to give, "There's nothing we can do." Well, I've decided we've got to do something. Helping the researchers of this condition may help me. It may not. But I'd like to help whoever is diagnosed with Motor Neurone Disease in future.

On the weekend of 3 and 4 May 2008, I am going to cycle from Amsterdam in the Netherlands to London in the United Kingdom and hoping to be sponsored with all funds being donated to Motor Neurone Disease research. But I need your help. I can't train, organise, fundraise and publicise alone. So please let me know if you are able to help out with the following tasks.

- Participate

Join me on the ride! I'd love to get a huge crew on the ride as well. Come on a racer, een omafiets, a chopper! The kicker is that it really isn't that far! From the Dam to Hoek van Holland to meet the ferry is 80 km and from Harwich to London is 130 km. That may sound daunting at first, but I did the Round the Bay in a Day in Melbourne off a couple of months training and that's 210 km. With this one, you get an nap in the middle!

It can be a long way to Amsterdam though, so if you are interested in a solidarity ride in another part of the world (New Zealand, Australia, I'm looking in your direction), let me know! Of course, that will mean you miss out the Keukenhof gardens in full Dutch tulip bloom and Koninginnedag party in Amsterdam a few days before, which is officially the maddest national holiday ever.

- Support

If the idea of all that exercise makes you tired, we'll need drivers and bike techs on the day. If you are comfortable driving on the right one day and on the left the next, you are just the person we are looking for.

I am on my way back home to New Zealand soon, so it would be fantastic to have local ride directors - one for the Netherlands and one for the UK - who can lock down the route and coordinate with the ferry and accommodation in Harwich.

Everyone will want to know what's going on too, so if someone is a whiz at communication, keeping a website up to date and maybe designing a poster or two, that would be ace!

- Billet

We'll need places to sleep and prepare and rest at either end of the race. If you can offer a spare room, bed, couch or particularly soft bath, get in touch!

- Fund raise

Spread the word and coordinate fund-raising activities. Would someone in your family, workplace, club or church like to ride with us? Could you hold a quiz night or cake stall to raise some money for us? Does your employer have a staff foundation or charity arm that can help out?

- Donate

Finally, if you can contribute or sponsor a rider, please let me know. At the moment I am hoping to work with the MND Association in the UK, which appears more research based than those in NZ and Australia, but once we know exactly where we can direct your donations, we'll let you know!

So, please get in touch, get involved, get training and pass this email along!

You can keep up to date on what is happening at http://rideformnd08.blogspot.com. Please send all emails to rideformnd08@googlemail.com.

Duncan

• Motor Neuron Disease Association (UK)
• Keukenhof
• Koninginnedag
• Hoek van Holland to Harwich ferry
• Training tips for long rides (Bicycle Victoria's Round the Bay in a Day)